Cross-border healthcare and centres of excellence to enhance patients’ rights: access, information and innovation

14:30 – 15:00 Registration & Accreditation

Meeting point: Altiero Spinelli (ASP) entrance from Place du Luxembourg

Chair: Stephen McMahon – Irish Patients’ Associations

15:00 – 15:20 Welcome address and keynote presentation

• MEP Patrizia Toia (Italy) Group of the Progressive Alliance of Socialists and Democrats in the European Parliament
• Mariano Votta – Director of Active Citizenship Network

15:20 – 15:50 ERNs and centres of excellence: a challenge beyond borders

• Enrique Terol – European Commission – Cross-Border Healthcare & eHealth Unit
• Ern Coordinators representative: Luca Sangiorgi – Coordinator, European Reference Network on Rare Bone Diseases or Alberto Pereira – Coordinator, European Reference Network on Rare Endocrine Conditions or Maurizio Scarpa – Coordinator European Reference Network for Hereditary Metabolic Diseases.

15:50 – 16:30 Experiences & perspective concerning cross-border healthcare. Proposals on how to contribute to improving patients’ access and information

• Argiro Katsarelia – President PESPA Hellas
• Jasna Karacic – Croatian Associationfor the Promotion of Patients’ Rights
• Paul Garassus, European Union of Private Hospitals (UEHP) or Freja Hagsund – Operations Manager European Regional and Local Health Authorities (EUREGHA)
• Ivana Cattaneo – Public Affairs Director Novartis Oncology Europe

16:30 – 17:00 Debate & closing remarks